Monday, December 21, 2009

Merry Christmas

I just want to wish you all a very merry christmas... and say a huge thank you to all of you that have given me advice and support.  The first person I met on here that I owe my sanity to is Jen and her adorable little Gavin. Reading her blog and seeing all the pictures of Gavin Livin a normal life gave me the ability to have hope for Ty. She is the first one that told me it was going to be ok that I would work through been so depressed about his diagnosis.  I am so thankful to all of you for all your comments and giving me a place that I fit in with Tyler, you have all been through it so I don't feel so alone. So, a HUGE ...Thank you...and Merry Christmas


  1. What is normal for us may not be normal to others. But if we live in a depressed, paranoid life, then how can we cherish the wonderful little lives we have created?

    I have taken Carson to at least 11 different states and I end up taking A LOT of equipment, but his feeding pump, pulse ox, nebulizer, and portable O2 isn't going to stop us. LOL

    I hope that you find in time that everyday gets a little easier. I have my moments when I'm exhausted and feeling a little overwhelmed. That is normal. But I have a great support system through friends I have met on the blog and outside the bloggy world. I hope that you can experience that as well.

    Merry Christmas to your beautiful family

  2. Aww you literally made me a good way of course! I love having you as a friend! Have a very, very Merry Christmas and give that little one a big sloppy kiss from Gavin and me!!!

  3. Hello! My name is Margaux and my 9-month old has CF. I was prenatally diagnosed but it was a huge shock for our families. I would love to add you to my blog if so :)

  4. Hi there! My son was diagnosed at 3 weeks, he is now 2 1/2 months old. Everything is still very new and I still have lots of learning to do but I find the CF community online is so great and has been so helpful so far. Even with the meds, salt, and physio, these little guys are the most amazing little babies! Hope you have a great Christmas, filled with lots of joy and love!

  5. Hi, my son is almost the exact age as Tyler and was diagnosed with CF at birth. Apparently, Tyler and my son Bennett have the exact same genetic mutations: Delta F508 and 621+1G>T. Here is my blog: I'd love to keep in touch as our boys grow and we cope with the shock of our life! Do you have a facebook account or email? My email is breckgamel @ yahoo . com. Thinking of you.